Open Internet vs. Closed Doctor-Directed Systems–Susannah Fox
This morning’s NPR story, “Patients Turn to the Internet for Health Information,” featured data from my e-patients report, but also some research that has been conducted at the Center for Health...
View ArticleE-health Reality Check–Susannah Fox
Press coverage of the Pew Internet Project’s recent report, “Information Searches That Solve Problems,” focused on how “libraries still matter” especially among young people. One aspect that I think...
View ArticleGo online. Not too much. Mostly…?–Susannah Fox
Michael Pollan’s answer to diet angst is to “Eat food. Not too much. Mostly plants.” Is there an equivalent maxim for information angst? If not, does someone out there want to make one up? Because a...
View ArticleStupid Cancer Show–Susannah Fox
Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show. Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and...
View ArticleHealth 2.0 Europe: A Moveable Feast–Susannah Fox
Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker...
View ArticleHealth Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you: His own post on Embargo...
View ArticleLaugh, Sing, and Eat Like a Pig–Susannah Fox
e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some...
View ArticlePatient Communities: Which Way Forward?–Susannah Fox
If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created...
View ArticlePresident’s Cancer Panel: Input, Please–Susannah Fox
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of...
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Ribbons, ribbons, everywhere
Peggy Orenstein‘s article, “Our Feel-Good War on Breast Cancer,” is worth one of your precious NYTimes.com chits (unless, of course, you’re a subscriber, in which case you have hopefully already...
View ArticleA field guide to The Diagnosis Difference
The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health...
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3 home health care hacks
I recently spent an afternoon with a dear relative who is being treated for cancer. Her medication regimen is so complicated that my mom, an experienced caregiver, visits her daily to help sort all the...
View ArticleCancer 2.0
Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world)...
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How did you find your people?
The 2012 DC Tweed Ride, sponsored by Dandies & Quaintrelles, an old-fashioned social club in a modern society (and an example of people who find each other online). Photo by Ted Eytan. The internet...
View ArticleA good death
You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we...
View ArticleHalf of 18- to 22-year-olds seek peer health advice online
A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar...
View ArticleWhat’s your advice?
My dad was a survivor — of a heart attack in his 50s, kidney cancer in his 60s, and an initial diagnosis of melanoma in his 70s. Melanoma recurrence and complications of treatment are what finally got...
View ArticlePublic Q&A: Peer support for parents of teens with cancer
Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is...
View ArticleProject management for caregivers
I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We...
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